Pictures Of Lupus And Sunlight What To Expect With A Diagnosis Of Purpura Fulmicans And Lupus Anticoagulant W/possible Phophosilid Syndrome?

What to expect with a diagnosis of Purpura Fulmicans and Lupus Anticoagulant w/possible Phophosilid syndrome? - pictures of lupus and sunlight

My daughter was diagnosed 20 months has recently been in hospital for children, sent a. I looked online but found nothing about life with her life, or to be taken for preventative measures. Everything I see some of the descriptions and photos. I know it's strange, but sure someone can give me some advice.
Thank you.